Families and Friends in the Rett syndrome community are dedicated and enthusiastic fundraisers for Rettsyndrome.org. People from around the country have contacted us to learn how to fundraise as part of a distance or endurance event for which they have already signed up and to find out how they can connect with others who may be participating in the same event. This could be a 5k, half marathon, obstacle course race, triathlon or more!
You have asked and this is our answer! Join those races as normal through their registration pages. You will then create and customize a personal fundraising page HERE where you can upload photos, tell your story, send emails to friends and family and share on social media.
Questions and feedback can be shared with Jackie Ventura, Family Development Manager at firstname.lastname@example.org or 978-500-2495.